In Italy there are 6,500 patients and about 35,000 individuals at risk of having inherited the gene mutation from the affected parent .
In the Tuscany Region, there are about 400 patients and about 1,500 / 2,000 individuals at risk :
- Is HD enough known?
- Do patients receive qualified assistance and care?
- Are local Institutions sufficiently involved ?
- To what extend reaserch can represent a hope for the future?
These are some of the questions we will try to answer during the meeting, which is open to both families and professionals: family doctors , psychologists , nurses , physical therapists , speech therapists.
All of them will have the chance to better understand what is Huntington's Disease and how it is possible to improve many people lives, thanks to the contribution of each of them .
The Conference program can be downloaded below.