Today, March 8, 2024, we are not only celebrating the international Women's Day, but also the birth of a new Association, named LIRH Friuli Venezia Giulia, thanks to a women, Annarita! The 'LIRH family' keeps growing.
Please, meet Annarita:
"My name is Annarita, 52 years old. I am a nurse. I have thirty years experience in the field of General Medicine. I currently work in Radiology, dealing with Magnetic Resonance Imaging and CT scans. I would describe myself as an empathetic person, with an expansive and "explosive" character.
The risk of suicide in Huntington's disease is very high. It is therefore necessary to monitor patients behaviors with due attention in order to prevent extreme situations.
The risk of suicide in Huntington's disease is very high. It is therefore necessary to monitor patients behaviors with due attention in order to prevent extreme situations.
Giorgia has offered to make her positive yoga experience available to other people living in contact with Huntington's disease.
Giorgia has offered to make her positive yoga experience available to other people living in contact with Huntington's disease. We have collected his testimony:
15/01/2021
COVID-19 quickly disrupted customary clinical practices. Within few weeks, as quarantine and social distancing became the norm, in-person medical appointments became increasingly sporadic and were replaced by those conducted with audiovisual tools. In doing so, telemedicine, hitherto on the margins, became protagonist.
From March 9 to April 30 – about 2 months - we were forced to go through, like everyone else, a completely new and unexpected situation, which we faced using all our flexibility and our spirit of adaptation . What appeared clear to us since the very beginning was that we would have never, ever stopped providing care to patients.
“To care for another person, in the most significant sense, is to help him grow and actualise himself… Caring is the antithesis of simply using the other person to satisfy one’s own needs.”
(Mayeroff, 1971)
Again this year, we were invited to participate to the annual international event dedicated to Patient Associations promoted by Roche : the International Experience Exchange with Patient Organizations (IEEPO 2020), entitled "From Chance to Choice: Creating the Future of Healthcare Together ". Central topic: personalized medicine.
L’Italia ha avuto un ruolo da protagonista in Oman, grazie all’intervento di Ferdinando Squitieri, presidente e direttore scientifico della LIRH, sulla malattia.
