LIRH annual conference
For many years, the Foundation has been promoting a day entirely dedicated to information on the progress of scientific research, specifically aimed at families affected by Huntington's disease. Research should not only be conducted and supported, but also communicated, both when it is successful and when it encounters obstacles or failures. The important thing is to conduct research in a correct and understandable way, even for the 'non-experts'.
Researchers, representatives of pharmaceutical companies, institutions and regulatory agencies, associations of patients with rare diseases - both Italian and foreign ones - meet every year, at our invitation, to share knowledge and hopes.