This event is part of the educational program on Huntington's disease started in 2014 by the LIRH Foundation.
It will take place on February 29, on purpose, to coincide with the celebration of the 9th Rare Disease Day.
Huntington's Disease (HD) is a rare, genetic, neurodegenerative , hereditary disease, affecting some 6,500 people in our Country.
HD has behind it a history of discrimination due to both involuntary movements ('chorea' , the greek word for 'dance') , and to mental disorder: HD is the human pathology with the highest suicide rate.
On the other hand, mental disorders affect 164 million people in Europe, including 17 million people in Italy, but only 1 out of 3 looks for medical assistance.
Starting with the history of this specific rare disease, the conference intends to share a message of solidarity with all those who suffer because of their health (or race or religion) condition, and whose suffering is, or has been for long time, not heard .
Genetic and neuropsychiatric diseases were the subject of pseudoscientific theories aimed at improving the human race : 'eugenics' - a term coined in 1883 by Francis Galton (Charles Darwin cousin ) - was widespread untill it get to Nazi Germany, where it became a socio-political movement whose program was to improve the human race by favoring the reproduction only of genetically ' healthy people ' .
The February 29 Conference intends to talk about neurological and psichiatric rare diseases in this new, original, perspective, comparing the points of view of science , religion , industry , communication , patients leading representatives.
See the program.