Friday, May 29, 2015
Huntington Disease among Knowledge, Care and Reserach
Republic of San Marino - Sala Montelupo Domagnano – Piazza F. da Sterpeto - h15.30
The Republic of San Marino Ministry for Health and Social Affairs and the Institute for Social Security, together with the LIRH Foundation, are promoting a meeting entitled " Huntington Disease among Knowledge, Care and Research", to be held on May 29, at the Hall Montelupo Domagnano, Republic of San Marino. This initiative will launch the setting up of an HD Centre in Republic of San Marino. Keynote speaker of the meeting will be the well known researcher Ferdinando Squitieri, a leading expert in the care and study of this rare neurodegenerative disease, who has been asked to lead the creation of the HD Centre. Ferdinando Squitieri is founder and scientific director of the Italian League for Research on Huntington Disease (LIRH Foundation), a not for profit organization promoting scientific research and providing free assistance to hundreds of patients and families. We know that about 6,500 Italian people are affected, and this rate will increase up to 17% by 2030 (Squitieri F. et al., ClinGenet. February 2015). The Republic of San Marino ( about 30,000 inhabitants), has a genetically complex population with several HD affected families. For this reason, both the Health Authorities and the Hospital Neurology Department are highly motivated to learn more about this disease in order to provide affected people with the proper assistance, thanks to Dr Squitieri and local physicians involvement. The meeting is open to physicians, health care professionals, patients, family members, media.