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Today, on Women's Day, the LIRH Friuli Venezia Giulia Association is officially born.
… give us a "conduct" in the overall management of his, and our, difficulties,. In January 2023 Mara was tested … similar throughout the north-east of Italy, combined with our past experience, made me feel it was important to set … we had to face, to not feel alone, to be able to build a network of support and knowledge. Our positive …
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Buone notizie da UniQure sulla sperimentazione con ATM-130 per la malattia di Huntington
… which came at the tail end of the Easter holidays, restores our hope and reminds us that research is not stopping: the … Huntington's community continues to have by its side a network of researchers at the forefront of the common battle … See the UniQure Site See the study sheet on our website Read the Official Press Release …
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Huntington patients at the forefront of the right to care: the LIRH Sardinia Association was born
… cannot and must not happen anymore. Today we are already a network of family members who support each other, but it is … that can help all those who live with Huntington in the our Region to come out of isolation and give them a voice, … Sardinian patients can finally feel "taken in charge" in our island and maybe, one day, thanks to the research and …
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LIRH Huntington Disease Research Award 2017
… in Huntington's disease. "We are very honored that our group receives this recognition from the foundation … Burgunder, Chair of the European Huntington Disease Network (EHDN), the European network of researchers involved in the study of Huntington's …
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Conect4children: A network for European clinical trials for children
… protocols. Conect4children (c4c) is a European network which includes pharmaceutical industries, pediatric … To be involved in any processes that affect our health directly is a right of each person, it is an … of experimental drugs and in clinical trials. Our Foundation strongly supports the participation of …
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LIRH Annual Conference 2022 – The ongoing therapeutic trials on Huntington Disease
… approached many HD hidden families, who then reached out our Foundation. Daniel … she decided to take an active role in creating a Huntington network that would bring together Sardinian families. In … and has been working for the European Huntington Disease Network (EHDN) since 2013. Selene holds a master’s degree …
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Cognitive rehabilitation
… symptoms and before the clinical diagnosis of disease. Our research projects in the cognitive area aim to identify … by the patient and the family member. The aim of our study is to validate a tool aimed at the perception of … Working Group of the European Huntington’s Disease Network (completed - in the data processing stage) …
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What are the chances of inheriting Huntington's Disease?
… will be happy to give you all the information. You can call our toll-free number 800.388.330 to take an appointment. … age, we also suggest that you contact NoiHuntington, the network of the young. You can find them on Facebook, …
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Huntington’s Disease in children
… as for the adult form. The European Huntington’s Disease Network (Euro-HD) and the Huntington Study Group (HSG) are … particular attention to the hardship of young people in our country, in collaboration with international …
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LIRH Annual Conference 2023 - New hopes from research for Huntington's disease
… approached many HD hidden families, who then reached out our Foundation. Nicola … she decided to take an active role in creating a Huntington network that would bring together Sardinian families. In …