"That Disorder" - Photography Project on Huntington Disease (HD) aims to make people understand what it means to live with Huntington's disease - a rare, neurodegenerative, genetic, hereditary, little known and much feared disease - through the faces and stories of those who are personally involved.
Loneliness, anguish, fear for the future, need for answers, need and fear of giving explanations to colleagues, friends, neighbors, schoolmates, sometimes even to their relatives. How to explain all these feelings to those who have never experienced them, or at least not all at the same time?
“Through photography”, was the response of the author Gabriele Berti, 48 years old and photographer from Florence, for years engaged in social reportage.
Gabriele began to portray the faces behind which all the emotions are hidden, in order to show and share them with the attempt of overcoming the risk of considering them “unreal”, if not connected to real faces, to real stories.
The shots, in the foreground and in black and white, will be exhibited in various Italian cities, together with the testimonies of the protagonists and preceded by launch events of the photographic exhibition.
“That Disorder ”- Photography Project on Huntington Disease (HD)
Photographs and texts by Gabriele Berti
With the support and contribution of the LIRH Foundation, together with LIRH Toscana, LIRH Puglia and Noi Huntington.
Meet the author Gabriele Berti