Our Network
National network
LIRH Toscana
Informazioni: Association of family members active in the Tuscany region
Indirizzo: Via Orly 39, 50013 Campi Bisenzio (FI)
Contatto: Giuseppe Scandale (Presidente)
Contatto: Silvana Oloferne (Vice Presidente)
LIRH Puglia
Informazioni: Association of family members active in the Puglia region
Indirizzo: Via Napoli 14, 70127 Bari Santo Spirito (BA)
Contatto: Ing. Nicola Micchetti (Presidente)
Contatto: Stefano Ronga (Vice Presidente)
LIRH Sardegna
Informazioni: Association of family members active in the Sardinia region
Address: via Eleonora d’Arborea 13, Sardara (SU)
Contact: Alessia Zurru (Presidente)
Contact: Romina Onnis (Vice Presidente)
Email: sardegna@lirh.it Sito Web Add to contacts
LIRH Friuli Venezia Giulia
Informazioni: Association of family members active in the Friuli Venice Julia region
Address: via Sompbearc 16/2b - 330131 Basiliano (UD)
Contact: Annarita Ciociola (Presidente)
LIRH Umbria
Informazioni: Association of family members active in the Umbria region
Address: Via Lidarno Petrignano 18 - 06134 Perugia (PG)
Contact: Michela Bracalenti (Presidente )
Annamaria Santucci (Vice Presidente)
Email: umbria@lirh.it Sito Web Add to contacts
Noi Huntington
Informazioni: The Italian Youth Network. The only youth association on Huntington's disease (15-35 years)
Indirizzo: Via Varese 31, 00185 Roma
Contatto:AAlessia Migliore (Presidente)
Contatto: Daniele Rizzo (Vice Presidente)
Centro Medico Certosa
Informazioni: LIRH outpatient office
Indirizzo: Viale Certosa 121, 20151 Milano
Hera onlus
Informazioni: LIRH Outpatient Office - Reproductive Medicine Unit
Indirizzo: Via Leucatia Croce 6, 95030 S. Agata Li Battiati (CT)
Hospital Casa Sollievo della Sofferenza (CSS)
Informazioni: Sede ambulatoriale LIRH
Indirizzo: Viale Cappuccini 1, 71013 San Giovanni Rotondo (FG)
Pubblica Assistenza di Campi Bisenzio (FI)
Informazioni: LIRH outpatient office
Indirizzo: Via Orly 35/37/39, 50013 Campi Bisenzio (FI)
Alliance Malattie Rare (AMR)
Informazioni: The Rare Diseases Alliance was born on the initiative of the Parliamentary Intergroup for rare diseases and is made up of technical patient associations and representatives from the institutional world.
Uniamo FIRM onlus
Informazioni: Italian Federation of organizations of patients with rare diseases
Life for Huntington APS Association
Information: Non-profit organization dedicated to raising awareness, disseminating information, and informing patients, families, and the community about Huntington's Disease.
Address: Via dei Prefetti 46, 00186 - Rome
President: Fabrizio Sonaglia
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International network
International Huntington Association (IHA)
Informazioni: The Federation that brings together all the patient organizations existing in the different continents
European Huntington Associaton (EHA)
Informazioni: The Federation among the 50 national organizations present in European countries.
Eurordis - Rare Disease Europe
Informazioni: EURORDIS is a non-governmental patient-driven alliance of patient organisations representing 949 rare disease patient organisations in 73 countries. We are the voice of 30 million people affected by rare diseases throughout Europe.
Huntington's Disease Coalition for Patients Engagement (HD-COPE)
Informazioni: Alliance between the main international organizations from different continents to claim the active role of patients in the development of clinical research
Huntington Disease Youth Organization (HDYO)
Informazioni: The international youth organization on Huntignton disease.
