National network
LIRH Toscana
Informazioni: Association of family members active in the Tuscany region
Indirizzo: Via Orly 39, 50013 Campi Bisenzio (FI)
Contatto: Giuseppe Scandale (Presidente): (+39) 339 76 94 345
Contatto: Silvana Oloferne (Vice Presidente): (+39) 39 3400 15 77
LIRH Puglia
Informazioni: Association of family members active in the Puglia region
Indirizzo: Via Napoli 14, 70127 Bari Santo Spirito (BA)
Contatto: Ing. Nicola Micchetti (Presidente): (+39) 339 377 16 28
Contatto: Stefano Ronga (Vice Presidente): (+39) 368 389 67 98
Noi Huntington
Informazioni: The Italian Youth Network. The only youth association on Huntington's disease (15-35 years)
Indirizzo: Via Varese 31, 00185 Roma
Contatto: Marco Salvadori (Presidente): (+39) 347 88 66 869
Contatto: Alessia Migliore (Vice Presidente): (+39) 338 95 14 268
Centro Medico Certosa
Informazioni: LIRH outpatient office
Indirizzo: Viale Certosa 121, 20151 Milano
Hera onlus
Informazioni: LIRH Outpatient Office - Reproductive Medicine Unit
Indirizzo: Via Leucatia Croce 6, 95030 S. Agata Li Battiati (CT)
Institute CSS - Mendel
Informazioni: LIRH outpatient office
Indirizzo: Viale Regina Margherita 261, 00198 Roma
Institute Leonarda Vaccari
Informazioni: The Institute deals with rehabilitation, integration and integration of people with disabilities
Indirizzo: Viale Angelico 22, 00195 Roma
Hospital Casa Sollievo della Sofferenza (CSS)
Informazioni: Sede ambulatoriale LIRH
Indirizzo: Viale Cappuccini 1, 71013 San Giovanni Rotondo (FG)
Pubblica Assistenza di Campi Bisenzio (FI)
Informazioni: LIRH outpatient office
Indirizzo: Via Orly 35/37/39, 50013 Campi Bisenzio (FI)
Alliance Malattie Rare (AMR)
Informazioni: The Rare Diseases Alliance was born on the initiative of the Parliamentary Intergroup for rare diseases and is made up of technical patient associations and representatives from the institutional world.
Uniamo FIRM onlus
Informazioni: Italian Federation of organizations of patients with rare diseases
| Attachment | Size |
|---|---|
| Governance_Alleanza Malattie Rare87.92 KB | 87.92 KB |
International network
International Huntington Association (IHA)
Informazioni: The Federation that brings together all the patient organizations existing in the different continents
European Huntington Associaton (EHA)
Informazioni: The Federation among the 50 national organizations present in European countries.
Huntington's Disease Coalition for Patients Engagement (HD-COPE)
Informazioni: Alliance between the main international organizations from different continents to claim the active role of patients in the development of clinical research
Huntington Disease Youth Organization (HDYO)
Informazioni: The international youth organization on Huntignton disease.
