who we are
The Italian League for Research on Huntington is the only Italian non-profit organization completely dedicated to research, assistance and knowledge of Huntington's Disease.
our vision
We aspire to live in a world where Huntington's Disease is no longer frightening
our mission
We strive to ensure that patients with Huntington's Disease, people at risk and their families - whether they live in Italy or abroad - have access to appropriate and innovative therapies, receive adequate clinical and psychological care and live their conditions without being subject to prejudice or discrimination.
Our objectives
Our overall objective is to support scientific research in the field of rare neurodegenerative diseases. As a priority, the Foundation will encourage and strengthen translational biological and clinical research on Huntington's Disease and related diseases.
research
Promoting studies aimed at the prevention and treatment of Huntington's Disease
awarness
Making the disease known in all its complexity and disseminate the results of research
patient's care
Guaranteeing the best possible assistance to anyone who needs it
training programs
Contributing to the training of specialists and health care professionals
1000+
families assisted free of charge
800+
Enroll-HD
project participants
2000+
toll-free number
calls per year
trasparency and sustainability
The statute
The LIRH Foundation is governed by its statutory bodies. For further information, download the statute.
Ethics code
The Code of Ethics is the document that outlines the principles and values that inspire us in carrying out our activities. In addition to compliance with the law, our core value is ethics, meant as honesty and fairness towards patients, donors, members, institutions and all our stakeholders.
