The Italian League for Research on Huntington Disease

Lega Italiana Ricerca Huntington e malattie correlate onlus (LIRH)

who we are

The Italian League for Research on Huntington is the only Italian non-profit organization completely dedicated to research, assistance and knowledge of Huntington's Disease.

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our vision

We aspire to live in a world where Huntington's Disease is no longer frightening

 

our mission

We strive to ensure that patients with Huntington's Disease, people at risk and their families - whether they live in Italy or abroad - have access to appropriate and innovative therapies, receive adequate clinical and psychological care and live their conditions without being subject to prejudice or discrimination.

Our objectives

Our overall objective is to support scientific research in the field of rare neurodegenerative diseases. As a priority, the Foundation will encourage and strengthen translational biological and clinical research on Huntington's Disease and related diseases.

 

research

Promoting studies aimed at the prevention and treatment of Huntington's Disease

 

 

awarness

Making the disease known in all its complexity and disseminate the results of research

patient's care 

Guaranteeing the best possible assistance to anyone who needs it

 

 

training programs

Contributing to the training of specialists and health care professionals

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1000+

families assisted free of charge

800+

Enroll-HD

project participants

2000+

toll-free number

calls per year

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The statute

The LIRH Foundation is governed by its statutory bodies. For further information, download the statute.

 

  LEGGI LO STATUTO

 

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RGBA(194,194,194,0.4)
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Ethics code

The Code of Ethics is the document that outlines the principles and values that inspire us in carrying out our activities. In addition to compliance with the law, our core value is ethics, meant as honesty and fairness towards patients, donors, members, institutions and all our stakeholders.

Scarica il Codice Etico

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