Lega Italiana Ricerca Huntington e malattie correlate onlus (LIRH)

The Italian League for Research on Huntington Disease

 

our vision

We aspire to live in a world where Huntington's Disease is no longer frightening

 

our mission

We strive to ensure that patients with Huntington's Disease, people at risk and their families - whether they live in Italy or abroad - have access to appropriate and innovative therapies, receive adequate clinical and psychological care and live their conditions without being subject to prejudice or discrimination.

 

 

 

 

Our objectives

Our overall objective is to support scientific research in the field of rare neurodegenerative diseases. As a priority, the Foundation will encourage and strengthen translational biological and clinical research on Huntington's Disease and related diseases.

 

research

Promoting studies aimed at the prevention and treatment of Huntington's Disease

 

 

awarness

Making the disease known in all its complexity and disseminate the results of research

patient's care 

Guaranteeing the best possible assistance to anyone who needs it

 

 

training programs

Contributing to the training of specialists and health care professionals

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È nostro obiettivo generale il sostegno della ricerca scientifica nel campo delle malattie rare neurodegenerative. Prioritariamente, la Fondazione intende incoraggiare e rafforzare la ricerca biologica traslazionale e la ricerca clinica sulla malattia di Huntington e sulle malattie a questa correlate.

 

Ricerca

Promuovere studi finalizzati alla prevenzione e alla cura della malattia di Huntington

 

 

conoscenza

Far conoscere la malattia in tutta la sua complessità e diffondere i risultati della ricerca

Assistenza

Garantire la migliore assistenza possibile a chiunque ne abbia bisogno

 

 

Formazione

Contribuire alla formazione degli specialisti e degli operatori sanitari

1000+

families assisted free of charge

800+

Enroll-HD

project participants

2000+

toll-free number

calls per year

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The statute

The LIRH Foundation is governed by its statutory bodies. For further information, download the statute.

 Read the Statute

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Ethics code

The Code of Ethics is the document that outlines the principles and values that inspire us in carrying out our activities. In addition to compliance with the law, our core value is ethics, meant as honesty and fairness towards patients, donors, members, institutions and all our stakeholders.

Download the Code of Ethics

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