Cat e Barbara

Advocacy Programs



Contributing to the training of specialists and healthcare professionals is part of our mission. Even for them, it is not easy to manage Huntington's disease because of its complexity and rarity, which does not allow to easily gain a solid experience in the field. For this reason, we promote training initiatives aimed at professionals who are dealing, or may be dealing, with patients suffering from Huntington's disease.

That Disorder- Progetto fotografico sulla malattia di Huntington

"That Disorder" - Progetto fotografico sulla malattia di Huntington

“That Disorder”- Photography Project on Huntington Disease (HD) aims to make people understand what it means to live with Huntington's disease - a rare, neurodegenerative, genetic, hereditary, not very much known and much feared disease - through the pictures and stories of those who are personally involved.

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