Webinar: Huntington disease and Coronavirus- a difficult combination
The Covid-19 pandemic is an health emergency that risks to deprive Huntington’s patients not only of their habits, but also of the therapies that they need.
In the past few weeks we have collected the fears, doubts and difficulties of many families , we have talked with other organizations close to Huntington’s patients from other countries and we have realized that the entire Huntington community is deeply disoriented.
So what can we do ? How can you dealing with this situation?
Together with the European Huntington Association (EHA) and in collaboration with the European Reference Network for Rare Neurological Diseases (ERN-RND), we set up a webinar with a group of experts, members of the European research network on Huntington (EHDN) that aims to:
- provide information on the specific risks of coronavirus for people with Huntington's disease
- provide updates on the implications for the ongoing trials
- share advice on how best deal with this particular situation
The webinar will be held on April 6 from 4pm to 5.30pm.
Two short opening speech are scheduled, one by the neurologist Bernhard Landwehrmeyer and the other by the psychiatrist Hugh Rickards.
During the webinar, 14 experts from the Huntington’s disease field, among neurologists, psychiatrists and psychologists from different European countries will be there to answer to your questions and concerns in 18 languages. Among them, will also intervene prof. Ferdinando Squitieri, scientific director of the LIRH Foundation.
The participants will have 45 minutes to ask the experts questions, both in English and in their native language through an online chat system.
To participate in the webinar, you need to sign up to the following link ten minutes before the webinar’s start https://zoom.us/j/284555212