giornata malattie rare

On the occasion of World Rare Disease Day 2022, we want to share ALL the colors of Huntington's disease: the patients' and ours.

On the occasion of World Rare Disease Day 2022, we asked HD patients, researchers and practitioners what color they associate with Huntington's disease and why.

we are the italian league for research on huntington disease and these are our colors!!

 

rosso

22/02/2021

LIRH Foundation participates in World Rare Disease Day 2021. The voices of patients and caregivers will take on color through their testimonies: 

  • what does it mean to have a rare disease?
  • what does it mean to have Huntington's disease?
  • if you were the minister of health, what would you do?

The protagonists will answer these questions. Starting from today, February 22, until Sunday, February 28, World Rare Disease Day.