Rare Disease Day 2022: The colors of Huntington Disease
On the occasion of World Rare Disease Day 2022, we want to share ALL the colors of Huntington's disease: the patients' and ours.
On the occasion of World Rare Disease Day 2022, we asked HD patients, researchers and practitioners what color they associate with Huntington's disease and why.
we are the italian league for research on huntington disease and these are our colors!!
The color I associate with Huntington's is RED, because I refer it to the courage, tenacity and strength with which everyone, patients, family members and colleagues faces the disease every day - Ludovica Busi, biologist and coordinator of research projects.
The color that I associate with Huntington's is RED, because it is the color of the Amaryllis flower in the variant I prefer: as from a bulb such a beautiful flower blooms, in the same way research will one day give the most beautiful fruits! - Maria Gabriele, Secretariat.
The color I associate with Huntington is RED, because it recalls strength, courage and love. People who find themselves experiencing this condition, whether as carriers of the mutated gene or as caregivers, fight this battle with strength and courage. From their stories it is clear how much love they have for life, for loved ones, but most of all for the little things - Melissa Casella, Psychologist and research fellow.
The color that I associate with Huntington is the BRIGHT RED, that red which catches the attention. In the same way it kidnaps and involves the history of every person and every family who, with their fears and hopes, come to us and, trusting and relying on us and on research, is committed to giving their story the best of the plots - Consuelo Ceccarelli, psychologist and research project coordinator
The color I associate with Huntington's is GREEN, which means growth, development and life… what patients and families and researchers need to look to the future with hope and determination - Simone Migliore, neuropsychologist.
The color I associate with Huntington is GREEN, because it is the color of serenity, which we hope to see in the people and families we meet, also thanks to our help - Eugenia Scaricamazza, neurologist
The color that I associate with Huntington is BLACK, because in the symbolism of medical genetics, black indicates who is sick - with the hope, however, of soon transforming it into the white of who is free from manifestations of disease - Ferdinando Squitieri, researcher neurologist.
The color I associate with Huntington is WHITE, because there is still a lot to write in this notebook, many pages still need to be filled - Federica Perrone, researcher neurobiologist
The color that I associate with Huntington's is To To
To me HD is Multicolor, because there are times when the hope to find a cure makes me think of a bright color (a nice orange), but there are also moments in which the sufferings of patients and families make me think of a darker color - Maria Pia Abruzzese, Study Coordinator Biologist .
The color I associate with Huntington is GRAY, the color commonly attributed to neurons, the "gray matter" of the brain - Sabrina Maffi, neuropsychologist
The color I associate with Huntington is MAGENTA, because it is the color of our logo. For me it represents everything we do to assist, study and communicate this rare disease and all the efforts needed to do so - Barbara D'Alessio, LIRH Foundation President.